What One Mother Has Learned About Grief and Loss

This month at Peanut Butter on the Keyboard, we’re talking about moms and loss and the grief that comes with it. But that’s not a bad thing or a sad thing.

It’s ironic, really, that talking about loss and grief can actually be uplifting. After reading Ellie’s poignant posts about her miscarriages, I felt so inspired. I want to be a coffee bean like Ellie. How can I give? How can I change the world through what I’ve learned? And same with Robyn’s post on having polycystic ovarian syndrome…she’s created such a good life in spite of her infertility. She’s an awesome mom, and she won’t let any sense of loss or grief deny her the joy she finds in her family.

As I was contemplating my own journey as a mom who’s experienced loss, I sat and tried to hold it close so I could write about it easier. But I’m having a hard time doing that…reliving the intensity of the anguish of expectations that didn’t come true. And I’m kind of glad. I’ve experienced a ton of loss as a mom–and terrible, wretched grief about it. But I’m at a new place. And it’s a place with a lot less fear because I already know the ending. That’s the beauty of becoming an older mom, I suppose. I already know that whatever happens to my children and to me as their mother, the love is there. It won’t die. It will be stronger than ever. Good will win.

In the long, long run, good always wins. I think that’s the most profound thing a person can learn, and I learned it through my experience as a mother.

I think back on the last 21 years—that’s how long I’ve had my son with mild Asperger’s Syndrome–and it’s been a real odyssey. I was afraid Nighthawk (that’s what I call him on this forum) would be ostracized as a child and a teen. Well, sometimes he was. I was afraid he’d be depressed about that. Yep—occasionally, he was! And I was afraid he’d be lonely, confused, and scared. Well, gosh darn it, he certainly was all three, many times.

The grief you feel as a mom to see your child hurting is excruciating, and I hid the depth of mine from everyone for so many years. What else can you do but move past all the incidents of hurt? You have to keep going. But I remember one particularly bad time when we were visiting friends in Spain. It was our last night there. Nighthawk was a teenager and his American cousin, a boy the same age as Nighthawk, was quietly invited over to a Spanish girl’s house—probably for a romantic goodbye–and Nighthawk was not, although he was her friend, too. He was visibly upset, both sad and angry. Usually, you hide when you’re hurt, especially in front of people you don’t know well, but Nighthawk didn’t. My brother took him aside and tried to explain to him the concept of being a “wingman:” yes, guys stick together, but if a special girl one of them likes enters the picture, the other guy understands and gladly steps back.

I tried to intervene, too, but there’s only so much a mom can do. It’s really up to your child to figure it out for himself. So while I watched Nighthawk try to process what had happened, I got through the rest of the awkward dinner with our Spanish friends with dignity and good cheer. I was a guest in this country, and I owed them that.

Even as I went back to my hotel with my sister, who was my roomie, I acted as if the hurt hadn’t happened. I pretended along with her that it was a beautiful night in a charming town in Spain. How often would experiences like this come along? She thought it was a kindness to me to forget the incident at dinner, so we tried for normalcy back at the room, laughing and talking, happy to be two sisters having a European adventure.

But I couldn’t sleep. I remember sitting up in bed and saying something like this to her: “What happened to Nighthawk was so painful to watch. And I’m tired of everyone just acting as if everything’s okay around me for the sake of moving on. My grief is real. I’ve been pretending for 17 years that I’m okay. But I’m not. And I’m scared that the hurt will never stop, for him or for me. I wonder how we’ll endure.”

That moment was a turning point for me. My despair, my sadness, all had its roots in being afraid. I wasn’t sure that I could handle the truth.

But here is that truth: my son wears his heart on his sleeve. He doesn’t have the instinctive social filter he needs to protect himself. He’s not sophisticated and never will be. He’s smart, though, and through a lot of practice, he can learn to navigate the world. He’s come such a long way already—he’s a junior in college now, he speaks several languages, he has friends and a part-time job. Embittered people sometimes use his vulnerability to entertain themselves. The kind ones are wonderful—helpful, friendly, and loving. But Nighthawk won’t always be around kind people. Perhaps more than the average Joe, he may get hurt, over and over, for the rest of his life.

This is not what I wanted for my boy when I birthed him.

When you’re low—truly low—you have two choices: to actually embrace what scares you or to hide from it. If you choose the former, you choose to live. If you choose the latter, you die inside.

And when you choose to live your truth, the big miracle is that strength and peace just come. In abundance! Some people call it grace. Some call it God. All I know is that since that night in Spain, I am living wholly. And those fears I faced—aloud in the presence of my sister—lost their power.

Those damned expectations I had the day I held Nighthawk in my arms for the first time as a newborn baby…well, they were phantom dreams that held me back from living my real life. They kept me from seeing vividly, every day, that I can celebrate the fact that my son is living his truth with courage, humor, and compassion. He’s a walking testament to the power of love and what it can do in a person’s life.

So this is why I’m in a new place. Sure, I know bad things can happen to Nighthawk, to me, to my family, my friends, and to the world. But I’ve experienced utter despair. I have used that power in me—whatever you want to call it–to stare down the fear, to somehow turn myself, despite all odds—like a rusty, stripped screw–from denial to reality.

And each day, I remind myself that the power that turned me is there. I call it Love. It’s truth and grace and God…it’s all that’s left in us when we think we’re empty. So in a way, I’m glad I’ve been reduced. I’m glad I know pain. I’m blessed to be the mother of Nighthawk, and I wouldn’t change a single bit of our path. To be fully alive, you have to be where you are. Not settling—no, indeed, we must fight hard sometimes to make things right—but having faith that truth will lead us to the place of peace and power inside us that allows us not only to survive but thrive.

That’s all I have to offer the world. That’s me being a coffee bean. I hope I’ve brought you hope—the way Ellie and Robyn have brought me hope. We’re meant to share it.

Every mom has had to witness her child’s pain. We tend to make it our own, don’t we? And every mother deals with expectations that didn’t come true. I’d love to know how you handle yours, if you’re willing to share. XOXO


Hi, I’m Kieran. My family loves music and anything that makes us laugh out loud. Along with Chuck, my husband of 23 years, I try to teach our kids that we have to actively choose happiness–and if I accomplish nothing else as a mom but pass that one lesson along to them, then I think I’ve done my job.

My oldest guy, Nighthawk, was diagnosed in kindergarten with Asperger’s syndrome, and now he’s a junior in college; his sister Indie Girl, who’s younger by 16 months, is a college sophomore; and my youngest, Dragon, is in ninth grade. For our family, it’s about managing your weaknesses and wringing everything you can get out of your strengths. And along the way, finding joy.

www.kierankramerbooks.com

This Month’s Theme

This month many of our posts will circulate around the themes of miscarriage, infertility, and kids with special needs. These are topics we often discuss amongst ourselves, and we thought they might be topics many of you have dealt with or are interested in as well. So please stop by all month and join in the conversation.

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Some Days I Don’t Want to Talk About It

Danger is almost five now, which means his delays are becoming a lot more obvious. When a two year old won’t answer your questions, you write it off. When a five year old won’t…well…

This is ushering in a new and interesting phase of The Autism Challenge.

I live in a small town, and I love it. People are friendly, they talk to you. Cashiers offer your kids stickers. It’s great. But…

But there’s Danger.

People in line try to talk to him, and he doesn’t talk back. The cashier tried to give him a sticker, and he doesn’t look. They want to know why he’s not potty trained yet when I take him to church (we’re actually making progress on that front!) people stare when he makes his happy noises.

And I have to answer. “He can’t tell you his name.” “Sorry, he probably can’t answer. He has autism.”

I didn’t consider this part of the equation. I’m sort of used to him (except the wandering…that I could do without, but that’s a whole other post…) and when he makes a triumph at home, we all understand it, because we know what he’s working with. We get excited when he points to something and says ‘this!’ because that’s progress and it’s amazing.

The outside world doesn’t understand that as progress for a nearly five year old boy. As the well meaning pastor in the kid’s wing at church said regarding the potty training: I’m sure you’re working on it.

And I wanted to yell at him. I WANT THE CHILD TO LEARN TO SAY WORDS. I WANT HIM TO LOOK ME IN THE EYES. POTTY TRAINING BE DARNED!!

But the outside world only understand how kids are ‘supposed’ to develop. When we go out there, we’re working with a deficit in their eyes. Not like here, where a two word sentence is the best thing ever.

But when we go somewhere, that’s not the case. People don’t see what he can do. They see what he can’t do.

And you get the people who don’t want to believe you when you say he has autism. “Is he a younger sibling? His brother probably talks for him.” (Yeah, well, except his brother had a horrible speech delay and didn’t speak until three…) Or I get looks of wide-eyed sympathy and questions like ‘do you think he’ll ever be able to live on his own?’

Well, gee, I don’t know. He’s five. Does it seem like your five year old can live on his own right now? No, it doesn’t seem like it. But in twenty years? Who knows.

These people are well-meaning. They certainly don’t mean me any harm, but some days…I don’t want to talk about it. And it’s becoming increasingly more difficult to NOT talk about it when I go out with him. I find myself staying home more. I can’t go to play date things because of the wandering…and if I did? Well, we’d still end up talking about it.

I’m aware this post has a certain bit of irony to it, since I’m talking about it. But then…sometimes you HAVE to talk about it. Or at least be honest about the way it affects your life.

I think the hardest part of it is knowing people look at your child and see what he lacks. He’s the most beautiful boy. He doesn’t deserve for people to see what he can’t do. The autism of course helps insulate HIM from those concerns…but not me.

This is a new phase we’re in, one I’ll do doubt get used to. But it’s one I didn’t really anticipate. One where your personal struggles, your life, feels more exposed to everyone you come into contact with.

Have you run into stages like this? With special needs or typical kids? Where you felt like you were, for some reason, more prone to stranger comments?

And on a completely different note…

A blogger friend of mine is supporting Charity:Water this holiday season. Right now, she’s doing a comment drive. People have pledged to donate money, just for your comments! Here are some of the offers:

  • Limecello is going to give $300 if they reach 1,000 comments.
  • Cecilia Grant will give $1 per comment up to 100 comments
  • The Romance Manwill give $50 when we reach 250 comments will match Limecello’s $300 if we get to 1,000 comments!!!
  • C2 will give $150 when they reach 500 comments
  • Farrah Rochon will give $10 for every 100 comments

So please, go, comment and find out more about Charity:Water and what you can do!

In the Forest

Note: I wrote this blog shortly after being traumatized a bit. I want to post it still because it was a really honest reaction to what I was/am going through, and I want people in similar situations to know, you aren’t alone. But I wanted to add a note to let you all know I’m feeling better now. :)

This wasn’t the blog post I was going to write. Not even close. In the past month we’ve been on vacation, moved, gotten a dog, I’ve signed with a second publisher been to RWA…it’s been a huge thirty days. I was going to talk about change.

Now I’m going to talk about things not changing enough.

It’s especially ironic considering my last post, but I think that’s parenting in a nutshell. The feelings are different every day.

Today I feel like I’m in the woods. I know they end somewhere. But I don’t know where. I thought I was closer than I am. I can’t go back, the option isn’t there. And I wouldn’t. Except I just want to sit down and give up today.

We moved into our new house a week ago. The first thing we did was put chains on the doors. Then we fenced the back yard. Why? Danger. Danger is an escape artist. He wanders. We thought we had it.

Tonight he unlocked his window and got out while I thought he was sleeping. We went to bring his dog to his room and he was gone. I’ve experienced this three times now. They have been the longest, most hellish moments of my life. I would go through unmedicated childbirth ten times over to never experience them again. To have avoided ever experiencing them. In those moments you realize how all those brilliant things that happened in the past thirty days mean nothing if that child isn’t coming home to you.

Thank God he was safe. Thank God.

I thought he’d progressed past this point. I thought he was progressing and I suppose he is, but it’s easy to let something like this steal that feeling. Like an alcoholic who loses their sobriety and has to start the count again. I’ve never seen him stim like he was tonight either. He was totally overdone.

Here’s the thing about parenting a special needs child: No one asks you if you’re up to the task. I’m not special. I’m not stronger than anyone else. But just like the mother of a typical child I love my son. More than myself. It’s the love that keeps me going. Without it, I would just be lost in the woods. As it is, I’m lost in the woods with that love pushing me forward.

Tonight I thought, I just don’t want to do this anymore. And then I thought WHY ME? And then I looked at him and thought, I love that kid. And so I keep going. Because I need to. Because I can’t do anything else. Because my son is precious to me beyond words. Because he’s brought me joy that surpasses the sorrow.

Maybe that sums up parenting for everyone. You will never know love so deep, joy so profound or sadness so intense as you do when you love a child. Adopted or biological, son, daughter, niece, nephew, grandson or granddaughter. Because they are in our care. Vulnerable to us.

And again, I wish I could see the edge of the forest so I’d know I was getting there. So I’d know I could make it through this okay. So I’d know I wouldn’t let him down. That I won’t let my other beautiful kids down either. But I don’t know. I can’t tell. So I keep walking. And I hope that love makes up for my missteps. I hope my kids’ guardian angels work extra vigilantly to cover where I fail. I pray that God is there to catch them when I don’t.

This isn’t the blog post I was going to write. But it’s the blog post I needed to write. Someday I’ll write a blog post about the shenanigans of our new golden retriever. Or about Diva picking grapes in the backyard. Or Drama and his impressive knowledge of geography. But today I had to write this. Right. *grabs walking stick* I’ve got to keep on hiking through now. I can’t see the end. But I hope love lights my way.

The time-out conundrum

Our oldest daughter, she’s about 3 1/2 now, is a great kid. (well, they’re both great kids, but today it is all about Busybee) She’s very well behaved. We get comments all the time from strangers when we’re out at restaurants about how well-behaved our girls are. She’s so full of joy it just bubbles from every pore in her body. As I’ve told our caseworker, she’s like walking sunshine. Her smile (I so wish I could share pictures with you!) is so bright, and so big you can’t help but smile back at her.

But she’s also a broken little girl. She comes from the foster-care system and lived with a drug addicted mother in abusive relationships. We don’t know a lot about her past before she got into the system. But I know she’s lost everything. Multiple times. When they brought her to our house, she was such a sad little thing, weeping for the family she left and terrified to be in a new place with people she didn’t know. She was scared of any number of things including the bathtub and she wouldn’t change her clothes for two weeks. Thinking back to those early days still dissolve me into a puddle of tears. My beautiful sweet girl.

She’s blossomed since then. Loves bath time now. She’s like a mermaid! And she’s a total clothes horse! She’s resilient and a survivor and herein lies the beauty and the problem with her. She’s nearly impossible to punish. We’re a time-out family and we do both where we put the kiddos in time-out and we put toys in time-out. But with Busybee, well, she might be initially upset by the sight of her toys going up on a high shelf, but then you see that resilience come in, she swipes her tears away and she smiles and says, “That’s okay, Mommy, I can play with that now.” And off she goes to something new.

Now like I said, she’s not a bad kid, she’s not ill-behaved most of the time, but she is a typical three year old in many ways…she doesn’t want to share with her sister, she’s beginning to fight her naps (despite the fact that she still desperately needs them!) and well, she obviously doesn’t mind all the time. What kid does? But we feel so stuck with the tools we have. We’ve tried positive reinforcement…if you do such and such, then you get to do this or you get a new that. She gets excited, but it doesn’t pan out. We’ve tried negative reinforcement…if you don’t do such and such, then you don’t get to do that. That doesn’t really work either.

So we stick with our time-out for both her and toys. And frankly we’ve seen no improvement on the behaviors that she struggles with. Now like I said, I probably shouldn’t complain, for the most part we don’t have big issues. She doesn’t really talk back, she doesn’t get out of her bed, even when she’s not napping, she doesn’t sneak toys that she knows she’s not supposed to play with, but she’s still not learning from her mistakes. Clearly we’re probably expecting too much because she’s so darn smart we forget that she’s only 3 and probably only 2 emotionally speaking. But there you have it, our big timeout conundrum.

So what are your discipline solutions at your house? Do you have defiant kids?


I’m Robyn DeHart, AKA Basket-Case Mama, but not because I’m crazy (though really, what mom isn’t?) but because I have a slight obsession with baskets, well containers really. I’m a bit of an organization nut and I love to containerize stuff. And yes, I’m authorized to use words like that because I am also a writer. But back to the kids, so I’m mom to two ridiculously beautiful little girls and I can say that without bragging because I didn’t actually make them. Last year my husband, The Professor, and I adopted said little lovelies from the foster-care system here in Texas and now we’re a big happy forever family. Busybee is three and so full of joy it just oozes from her. Babybee is a walking-talking toddler who has a heck of a temper but is so cute, it almost keeps her out of trouble. Though neither of my girls are newborns, I’m fairly new to motherhood compared to the other peanut butter moms, but we’ve settled in as a family as if we’ve always been together. When I’m not trying to keep up with my two bundles of energy, you can usually find me on my laptop on Pinterest, no, that’s not right, um…you can find me writing, yes, that’s it, writing my latest historical romance. www.robyndehart.com

On Milk Allergies and Trusting Your Mommy Gut

There are millions of new things to worry about when you bring a newborn home for the first time, especially when it’s your first child. You’re completely freaking clueless no matter how much you thought you prepared ahead of time. And I was no exception. I had read every book I could get my hands on, had followed all the “rules”. For nine months I didn’t have even a sip of wine, I avoided deli meat and hot dogs because of listeria, and I skipped peanut butter in the third trimester because it can trigger allergies in the unborn child (supposedly.) Yes, I was that mom, Ms. Paranoid, take everything the baby book says as gospel.

So when I brought my lovely, wrinkly newborn home, I thought I was armed with knowledge. Well, yeah, that didn’t go so well. For the first eight weeks, my baby was miserable. He wouldn’t sleep, he cried nonstop and after nursing, he seemed to be in pain, his little knees curling to his chest as he passed the most ferocious gas ever. Seriously, how could something so little be so loud? I brought him to the doctor, convinced he had something wrong and my pediatrician at the time told me, “probably colic.” Colic–code for, we don’t know what the hell is wrong with him and you’re being dramatic.

So off I went back home with my baby still miserable (and me out of my mind with exhaustion and worry.) I remember calling my mom one night when my husband was out of town and my son wouldn’t stop crying. I burst into hysterical tears along with him over the phone and freaked my poor mother out. She was on a plane the next day (even though she’d just left a week before) to come and help me. Bless mothers.

And of course, my mom, being my mom, was like–there is something wrong. I don’t care what the doctor says. This is not normal. Finally, someone who agreed with me. So off to the trusty internet I went to start researching and self-diagnosing (usually dangerous, but in this case helpful.) I found out about milk allergy and went back to my doctor to ask about it. During the visit, kidlet conveniently let one of his epic gas episodes rip and the doctor asked in shock, “Is it always like that?”

Hello! Yes, have you not been listening to me?

So long story short (well, not so short), but they tested kidlet and he had a milk AND a soy allergy. Not the anaphylactic shock kind, but an intestinal allergy which made his intestines bleed. Poor guy had been suffering any time I had the slightest bit of anything with milk/soy in it and he’d take it in through breast milk. I had to cut all milk and soy out of my diet–which is basically everything. Try finding a loaf of bread in a normal store that doesn’t have milk. It wasn’t fun, but I was determined.

Kidlet recovered and after he turned three, we were able to work some dairy and soy back into his diet. Doc declared him fully recovered, though I still had my doubts. He seemed to have problems after he drank straight up milk, so I pulled him off of it. I thought I was being paranoid, but then this week kidlet started summer day care and went from home-packed lunches to school lunches. Well, two days on milk and he’s had diarrhea for a week. *sigh* Apparently he hasn’t grown out of it. I don’t quite understand how he can now have cheese with no problem but milk or yogurt set him off. It may have developed into a lactose intolerance instead of an allergy. But anyhow, once again I’m checking labels and monitoring what he eats at school.

So, honestly, I’m not sure what my point is in this post, lol. But I know when I was looking for info on milk allergies as a new mom, it was helpful to hear stories from other moms since the doctor kept telling me “colic.” So maybe someone who needs to read this will find it. Also, it’s a lesson in trusting your parental instincts even if you’re new to the whole mommyhood thing. If I hadn’t kept pushing and researching, I would’ve continued unknowlingly torturing my child.

Have you ever had a time where trusting your mommy (or daddy) instincts got you the answer you needed? Anyone else had a child with “colic”?  Does your child suffer with food allergies or sensitivities?


I’m Roni Loren, or as I’m called ‘round these parts, No Drama Mama. I’ve been married for ten years and have a four-year old son, who has recently been diagnosed with high-functioning autism. My days are spent writing very sexy romances (my PC way of saying erotic),avoiding all things housework, and hanging out with a kidlet who I suspect is vastly smarter than I am. I secretly dream of having a life that looks like the pages of Real Simple magazine, but would settle for Sorta Decent if could get there. My daily goal is to keep the drama on the pages of my books and out of my life–I’m successful at least twenty percent of the time. www.roniloren.com

In Denial About Summer

I kind of hate summer. There, I said it. Summer does not make me happy. Maybe if I lived some place lovely where summer meant 75 degree days and afternoon rain showers. But no, I live in Dallas where it gets so hot that you can hardly bear to be inside with your overworked air conditioning (which can never keep up), much less actually venture outside into the 100+ degree oven daily. And it is just not natural for it to still be 95 degrees at midnight. Seriously.

But now I have an added thing to make me dread summer. Lack of school for kidlet. Up until last summer he’s been in part-time daycare. So it didn’t matter when summer came because his schedule stayed the same. But now that he’s going to the special preschool program with the school district, that program ends just like all the others for summer. And since he’s still not potty-trained at four (please God, let this click soon), that means daycares now won’t take him and summer camps are out. So our only option is a drop in daycare that we use on occasion. I like the place, but it’s limited and he’s going to get bored if he goes there too much.

But mommy (that’d be me) has to write a novella and full novel by the end of October. And there’s no way I’m going to get all that done without some kidlet free work time. So basically, I’m in denial. I’m refusing to even think about the long days of trying to keep a very active, very intense child busy.

So I’m appealing to you moms out there. What are some activities you use to keep your little ones busy during the summer that give you a little bit of quiet time in the process? And am I the only one with her head in the sand about summer?


I’m Roni Loren, or as I’m called ‘round these parts, No Drama Mama. I’ve been married for ten years and have a four-year old son, who has recently been diagnosed with high-functioning autism. My days are spent writing very sexy romances (my PC way of saying erotic),avoiding all things housework, and hanging out with a kidlet who I suspect is vastly smarter than I am. I secretly dream of having a life that looks like the pages of Real Simple magazine, but would settle for Sorta Decent if could get there. My daily goal is to keep the drama on the pages of my books and out of my life–I’m successful at least twenty percent of the time. www.roniloren.com

Zen and the Art of…Having No Zen

People ask me, a lot, in interviews for blogs: What does a typical day look like at the Yates house?

I never know how to answer this. Mainly because at this point I’m completely unfamiliar with the concept of typical, or routine. Even with my special needs kids, the need for a routine just doesn’t seem to be there…or be…possible.

I should have gotten the hint that this was how my life as a parent was going to be when I only had one child, and I was dressing him to go on an outing and he peed through his diaper and onto his fresh, adorable outfit, creating the need for me to change his clothes. Which I did. And then he immediately did the same thing to his backup outfit. So I changed him again. And he did it AGAIN.

Yes, this early warning sign should have been heeded, should have been seen as a dark vision of things to come. It was not.

Fast forwarding six years and that kind of incident is really…typical. Let me walk you through the morning ‘routine’ (haha).

Diva gets up, and her first words to me might me: CUP!! SHOW!! GO GEEGO GO!! (That’s Go, Diego, Go.)

Me: All right, okay. *sets down coffee and hops to attention*

Dive: CUP!! A CUP!!

Me: I know. Just a second. Where is your cup?

I might search for ten minutes and find it behind the couch, where she threw it the night before during a pre-bed fit. Okay, I’ll make her some milk (CHOCATE MIWK!!) okay, chocolate milk, and then I’ll get the show.

Drama awakens: Morning.

Me: Morning.

Drama: What’s the capital of Minnesota

Me: I don’t know what is it.

Drama: *looks at me like I’m stupid* St. Paul.

Me: Good job.

Drama: I need milk

*makes more drinks. Then cereal.*

Danger gets up. Right now he’s saying: WANT THIS all the time because he knows he’ll get his way as a reward for using speech so from the moment he gets up, everything from the sugar to the jars of jelly to the honey bear (all things he knows he isn’t supposed to have) are WANT THIS. By now, Diva is done with her milk and wants more, but Danger also WANTS THIS and they’ll probably both shout CUP and WANT THIS at me until I get it done.

Then comes the mad search for clothes. No, I didn’t set them out the night before. SOCKS!! WHERE ARE THE SOCKS?? How is it we have three socks and none of them are the same color!? (somewhere in here I drink more coffee)

While I’m hunting for clothes, Danger will manage to get into something. Last week it was Nestle’s Quick. Over the course of the day I had to shower him off three times after he carried the tub of powdered chocolate off and basically PAINTED his body with it. Then I’ll clean up Danger’s mess.

Then I’ll look at the clock and realize it’s time to go. So I load all three kids up into the kick butt mini-van, realize Danger still has chocolate on his face and scrub it off with a cold baby wipe that sat in the car over night (He will fuss at me BUT HE SHOULDN’T HAVE GOTTEN INTO THE CHOCOLATE), get the movie turned on (my van DVD player has saved my sanity on more than one occasion) and start the twenty minute drive to the school.

Halfway there it will occur to me that I forgot Drama’s backpack.

So there, that’s an idea of what a typical day is. Nowhere in there do I see perfection. It’s not organized. I am not June Cleaver. 

I used to look at the Facebooks of friends I grew up with. At how they got up at six and baked bread and then sat all their sweet, clean-faced children down and they ate a hot breakfast all together. And I would wonder why that wasn’t me. And I would feel bad. But then, also through Facebook, I would watch people grow horribly discouraged about their day, about their parenting in general, because a child got jelly on his new shirt and the whole day was thrown off. Or because they hadn’t managed to keep the house spotless. The day wasn’t perfect.

And then it hit me that life can be so much more enjoyable if the idea of perfect is adjusted just a little bit. Perfect is time spent with my family. My husband, my kids. It’s any day where we avoid a (serious, life-threatening, fire-involving) disaster. It’s when my kids are allowed to be kids. Joyful, messy, annoying, dirty kids.

It’s finding zen in the middle of the chaos. Joy in the imperfection. Because it’s the life I have, and it won’t always be the same. The kids will grow up and I won’t have jelly hand prints on my wall. I won’t have someone chattering in the background (constantly) asking me what state borders Idaho. And I don’t want to look back on this and realize I wished it all away. That I was waiting to arrive at a point of Perfect, and Organized and Clean and Quiet before I could start enjoying it.

I want to enjoy it now. It’s chaos…but it’s my chaos. And it’s the chaos I’ve got. The life I’ve got. My prayer is that I learn to embrace, fully and completely, the joy of the life I’ve been given, and not spend all my time wishing I was doing different or ‘better’.

Though, I bet my husband wishes I would vacuum in heels and pearls. Or maybe he’d just settle for me vacuuming….

The Polite Child Faces the World of Rudeness

So one of the jobs of a parent is to teach your children social norms, how to interact with society, and hopefully, how to be polite and friendly person. And having a child with autism means this is an even bigger focus for my household because my kidlet doesn’t have that finely tuned sensor that picks up those social cues like a “typical” child would. So we work with my son on learning how to engage people, how to have a give and take conversation, and what things could be considered rude. It’s a painstaking process at times.

However, earlier this week I had to bring him to school instead of him riding the bus because they were going on a special field trip. And as I was waiting outside with him, other kids were streaming into the school for their normal day. Well, my dear kidlet saw a little boy walk by who looked to be kindergarten age–so probably a year older than him. And kidlet perked up and said, “Hi! How are you?” And I’m thinking–well, look at that, my son is reaching out and engaging a child. Score!

But then the kid turned his head and gave my kidlet this snotty, what’s-your-problem look. Of course, kidlet didn’t register that reaction. He just smiled and waved at the boy.

Then, not thirty seconds later, another boy–probably eight–pulled onto the sidewalk on his bike. Kidlet–always one to be excited by the simplest things–said, “Wow, I like that bike!”  The kid rolled his eyes and said in a sarcastic tone, “Whatever. That was so three weeks ago.”

My jaw probably hit the grass. I kinda wanted to trip the kid right off that damn bike. He was old enough to see the child talking to him was all of four. And I was standing right there, holding kidlet’s hand.

And that’s when reality truly sank in–the world, especially in kid land, is mean and cruel. I’m trying to teach kidlet “social norms” but what if social norms mean being a bratty jerk? Here kidlet is being innocent and trying to practice what mommy and daddy are telling him are the “nice” things to do, and he’s shot down or ignored over and over again. It breaks my heart a little each time. I know it’s part of the deal. Kids certainly weren’t nice all the time in my childhood either. But it seems it’s only getting worse. Now they don’t even seem to keep it in check around adults.

It’s ugly and it’s sad. And it makes me want to build a cocoon around my sweet, innocent boy even though I know that’s not realistic or preparing him for the world at large. But knowing that he has deficits in those social areas makes me worry even more for him. He doesn’t have the tools to defend himself right now and probably won’t for a while–if ever. It’s like being thrown into war with a toothbrush when everyone else has machine guns.

But despite all that and all my worries, I have to say, I’m glad I have the polite child even if it come with lots of challenges. He may be an anomaly amongst his “normal” peers, but that doesn’t make the other kids behaviors the right ones. A lot of them could learn something from him.

*end rant*

I really did want to trip that kid.

How do you handle it when your child is picked on or other children shut them out? What social norms do you try to instill in your own children?


I’m Roni Loren, or as I’m called ‘round these parts, No Drama Mama. I’ve been married for ten years and have a four-year old son, who has recently been diagnosed with high-functioning autism. My days are spent writing very sexy romances (my PC way of saying erotic),avoiding all things housework, and hanging out with a kidlet who I suspect is vastly smarter than I am. I secretly dream of having a life that looks like the pages of Real Simple magazine, but would settle for Sorta Decent if could get there. My daily goal is to keep the drama on the pages of my books and out of my life–I’m successful at least twenty percent of the time. www.roniloren.com


Guest Mom: Author Pamela Morsi

Secrets of the Special Needs Mom

All moms are special and, heaven knows, all moms have needs. But there are those among us, like myself, who have found ourselves singled out in the crowd. Our children, because of health issues, genetic mutation, accident or injury are defined as Special Needs. We, who are their moms or dads are called Special Needs parents.

I bet there is one of us right in your neighborhood. You’ve seen her, at school or daycare, in the park. Maybe you’ve even admired her from afar as she stoically faces untold challenges raising kids that are “not off the rack” so to speak. One thing you feel certain about, is that she is nothing like you.
You’ve seen her on the airplane. Her child is frantically flapping his arms and making strange squawking sounds, while she continues speaking to him in a calm, modulated voice. It’s as if this giant scene her child is making, that is visibly annoying the businessman in the second row, doesn’t upset her a bit. She must be a hero.

Perhaps you’ve seen her on the nature trails. Her child’s motorized wheelchair has somehow managed to get snagged on a stray tree root. Her little boy, who was so looking forward to this outing, has limited speech, but a normal temper. He keeps slamming his hand down on the forward button, screaming, “WANT GO! WANT GO!” as she gamely attempts to lift the combined weight of chair and child. What a hero.

Or maybe she was the mom you saw sitting in the stadium viewing stands awaiting her daughter’s big moment as a Special Olympics medalist only to hear a smart-alec middle schooler behind her say jokingly, “So now we get entertained by the retards.” The fact that she does not stand up, turn around and slap the teenager’s expensive orthodontia right out of his smug, self-satisfied mouth makes her a hero.

The larger than life Special Needs Mom is almost a cliché in our culture. They are selfless, devoted and endlessly patience. They are nothing like you. You are the parent of a “typical” child. That’s a nomenclature thing. We don’t call your child “normal”. If we were to do that, then that makes our children “abnormal”.

Our children are not abnormal. And as parents, honestly, we are very much like you.

I’m not surprised that you wouldn’t know that. You’re certainly not alone. Television shows and movies seem to always depict the parents of children with challenges as truly stellar characters. And even on the news, we get to see that Dad that pushes his wheelchair bound son in the marching band or the mother who gave up the fascinating anthropology work or the fashion runway to stay home and spend her days trying to make eye contact with her autistic offspring.

“God provides Special Children with special parents,” my pastor told me one time.
Talk about wanting to slap somebody’s teeth out! (And it would have been easier than the teenager’s as the pastor’s were only held in by Fixodent.)

With very few exceptions, handicapped people are not born to those who volunteer to rear them. For most of us, well, it was more like we were drafted.

Never, in my remotest imagination did I think that I would end up a Special Needs Mom. Healthy, happy, solidly married, financially secure, not too old, not too young, great genetics and an uneventful pregnancy somehow led me to this road less traveled.

I didn’t immediately recognize it as off the beaten track. After a scary emergency C-section, where the fetal heart beat stopped twice. My beautiful Leila slipped into the world screaming bloody murder. Wide-awake with a full head of hair, she was the most beautiful newborn that I had ever seen. And she was adorable. Who could resist her? Definitely not me.

They kept her in the hospital for five days running tests, but found no problems. Her Apgar was good. She was healthy. Maybe she was a little overdeveloped. Post-maturity they called it, but didn’t raise any red flags. I took her home.

She was the best baby ever. People commented on it all the time. I assumed it was my excellent parenting skills. In order to sound more modest I told people, “Heaven looked down at me and said, ‘This woman can’t handle much. Send her an easy one.’” Everybody laughed, just as I intended. I had no idea that the joke was on me.

I’ve learned a lot in my daughter’s lifetime. Lots of lessons I never even knew that I needed. One day I was at lunch with a work friend who said, “I could never do what you do.”

I should have smiled, thanked her for the implied compliment and let it pass. But on this day, I didn’t. I filled her in on the secret that I’m sharing with you.

“Oh yes, you could. Oh yes, you would.”

Parenting is parenting, and it’s a continuum. Some little ones can be born in this world and with virtually no guidance manage to find their way to successful adulthood. Others can be born unable to breath without assistance.

Here I’d like to quote a couple of rhyming lines that the kids learned, useful when handing out prizes or treats that were perhaps not all the same size, color or desirability.
“You get what you get and you don’t throw a fit.”

Whenever or however you take up the mantle of parenthood, we all know it does not come with guarantees. The dad who wants to re-live high school football stardom through a son, seems destined to be blessed with a bevy of pretty pink princesses. And the mom who found Debate Team so empowering, is often dumbstruck with her child’s ambition to be a cheerleader. Special Needs parenting is, more honestly, a dimension of that than it is a noble duty or a cross to bear.

Yes, it can be stressful, exhausting, thankless and sometimes scary. Welcome to motherhood. Every mother/child relationship has days like heaven and days (maybe weeks) like hell. Being mom is simply not easy.

I think the thing that’s maybe harder to convey is that we love our children as much as you love yours. The sight of them doesn’t scare us or repulse us. We see them with the same loving eyes with which typical parents gaze upon their typical children. Which brings me to the biggest secret of all?
We don’t envy you. It may be unexpected to hear this, but we love our children as they are. The problems they have are the problems that we’re used to. And the pluses that come with that, outweigh so many things that we once valued.

Every morning when Leila boards her bus to the Sheltered Workshop where she is employed, she has a smile on her face. In the afternoon when she comes home, she’s still grinning. She loves her job. When her tiny paycheck comes, she wants to rush to the bank where she is so proud to write her name on the back. None of my typical children are as happy, as fulfilled, as contented with life.

So many times, at so many milestones, I’ve tried to imagine what Leila might be like if she were typical. And my conclusion continues to be, she wouldn’t be Leila. She is funny and hardworking, endlessly optimistic and interesting. She’s devoted to routine and she keeps the rest of us in line. She is a vital part of our nuclear family and unlike her siblings, she will not be going off to form her own unit, to have her own children or live a separate life. She is ours forever. That makes our world different, but it doesn’t make us different. And it doesn’t make us heroes, merely parents.


Pamela Morsi writes fiction that depicts the lives of ordinary people overcoming everyday challenges. And she manages to do it while putting a smile on your face. After a successful career in the historical romance genre, Pamela Morsi ventured into contemporary fiction with her titles for MIRA Books, including, Bitsy’s Bait & BBQ, Red’s Hot Honky-Tonk Bar and The Lovesick Cure. Being a writer was a childhood ambition that got sidetracked by life. Despite having a graduate degree in library science, a marriage, children and a career, Pam had never met a real novelist and didn’t have any idea how to become one. Then one fateful afternoon, on her birthday, she came home from work in tears. “I could have been a writer,” she told her husband. “I could have been a writer, but now because of you and this house and these kids, it’ll never happen!” He was sympathetic… for a while. A few days later, he bought her a computer and set it up in the corner of their bedroom. “You can’t quit your job,” he told her. “But I can take care of the cooking and the kids. You have every night and every weekend. Write your blankety-blank book or shut the blank up about it!” Now, twenty-four novels later with her full share of great reviews, awards and bestseller listings, she’s still not sure how one goes about being a writer, except by simply sitting in the chair and typing one word after another. Pamela does this consistently from her family home in San Antonio, Texas.